Tuesday, 4 February 2014
back to the benefits system
I got yet another medical form-back in February last year- through which they said they never received. I asked for a new one to be sent out-near the end of March-and was told that I would not be granted an extension but I could put reasons for why it was late and the form would not be regarded as not returned. I received this form around mid to late April. As I was gearing myself up to fill it out (I hate doing these forms as I know they will bring me into a deep deep depression when I realise just how little I can do and just how much my mental health affects me) when a very good, personal friend sadly passed away. I was, to say the least, devistated. So I sent it back much later than I should have, not having filled it out, till around June time. I explained on the form why I hadn't got it back on time. I photocopied the form, but regretfully did not send it recorded delivery (again my mistake). I waited about two months to hear something (two very stressful months) until I rang again and asked what was happening, in August I was told they had not received my form AGAIN and when I asked what would happen was given very little information.
I rang nearly every day because I needed to know what was happening, my mind was close to exploding I was so worried. I rang again in September, I asked whether they had yet received my form and I was told that they had actually received my form back in JULY! So I was lied to and made to panic for well over a month, just because they felt like it I suppose?
Anyhow, when I asked what was happening, I kept being given the same line "it is still being looked over". I'd ask if I'd have to come in for a medical and got that response, was I going to lose my benefits? Same response. I was beyond the point of stress at this point. I was barley holding myself together, what with still grieving over someone I loved and my day to day mental health issues. Yet I could get nothing from them. Eventually (by this point I've lost count of dates and months) I rang and was told I'd have to come in for a medical. Now I really begin to freak out, I really don't want to have another medical where I have to disclose very personal information to a person who doesn't even specialise in mental health.
This time, conscious of the fact that many lies have been told about people in the past and almost certainly in my last medical, I asked for this medical to be recorded! If this request is made, they are obliged by law to ensure the medical is recorded. Now I know they only have a set amount of recording equipment, thatis shared between atos assessment centres (this boggles the mind too, surely if they have to fulfil a request to have something recoded, they should have the money to have the equipment, I mean it's not like they're not getting paid enough). We are now in February 2014, and my appointment for my medical is FINALLY going to be next week (assuming they don't cancel because they were mistaken in thinking they had the equipment on that day-yup that one has happened to me too). I have been stressed and worried about this for nearly a year now. My mental health has declined dramatically.
During all of this time, I get weekly calls (well they stopped in January-no idea why) from my WRAG 'support' officer. to see what is happening. Continuously telling me, they will have to bring me in for an appointment at some point (more stress yay) as it cannot always be over the phone. For this system to understand ones instability when it comes to illness of any kind, seems impossible. Can I go somewhere I have planned if it is not mandatory, most of the time. Can I do the same thing when I risk losing my benefits if I do not? No! Why you may ask, what's the difference? Simple. Pressure. Pressure of any kind at this moment in time makes me fold. I cannot handle it and my mental health begins to take a dramatic decent because I cannot see an end to it all. Just going round and round in the same circles inevitably doomed.
Then we have programs such as "benefit street" & "on benefits and proud" demonsing everyone on benefits. Editing out the bits that don't do just that. Making people on benefits look like dirty little scroungers who all need to just get a job. Endless news paper articles about this scrounger and that scrounger and how terrible those on benefits are. People believing the economic decent of this country was bought down by those of us unfortunate enough to have to rely on benefits. Even though the clue is right there in what the crisis was called "the banking crisis" not the "benefit scrounger crisis"
This all adds more and more pressure to someone like me, I have a dream of one day working and living my life without all the issues I currently have, but all this pressure is not going to make that happen. I am ashamed to say, new years eve I began to take an overdose. I just wanted out from what I could only see a a roundabout of hell. Through my mental health and the benefits system. I just didn't feel I could take any more. I luckily found the strength to ring my mum and tell her to get home from work because I had started to take an overdose and I needed to get help NOW. So I did not end up taking that over dose, some people say that's a good thing, at times I think it is, at others, when I feel constantly hounded by the benefits system and the relentless press on scroungers, I don't think it was such a good thing. People ask me now, what stops you from doing it now? The honest answer is the risk of failing!
If anyone thinks life on benefits is easy, they are so wrong. If someone could give me my health back I'd be off benefits as quick as possible. I hate the system and the way it hounds me. I hate feeling like a useless member of society and I hate the fact that, that feeling is constantly reinforced daily by the media. I didn't go and get a degree to sit and do nothing with it. I do't choose to be ill, so for all those that think it's unfair I get "free money", personally I feel it is a lot more unfair that others have their health and freedom of choice. Please think about that next time you decide people on benefits are scum. You have choice, you CAN work. I've heard the point "it is horrible for those that go out to work every day, to see those on benefits with their curtains close having a lovely sleep in" take on this point though, it isn't so fun to be the one sitting doing nothing, when you see people going to work every day, just wishing that could be you. It's not so fun watching others lead a life you can only dream of because unfortunately for you, your freedom of choice was stolen from you by illness.
Saturday, 4 January 2014
Suicidal, really?
Twice now, I myself have become suicidal, I will tell you about my most recent experience, because I believe this time it clarified a lot for me. I was laying in bed one night with thoughts of suicide jut going round and round in my head. How I would do it, when I would do it, what it would be like. In that night I had set out an entire plan for the next day! However, after starting to take an overdose, something stopped me. I decided to get help instead. I rang the crisis team who told me to go to A&E. By this point I was a total mess. I rang my mum and worked and begged her to come home. Which she did. She took me to an A&E that had a mental health unit. I was so scared for my safety, I truly felt I should be in hospital. They checked I was medically fit and sent down the liason team who, after seeing the disagnosis of a personality disorder, made up their minds that I was not going to be taken into hospital. I tried to explain how unsafe I was feeling, how scared I was feeling but it wasn't going to happen. They referred me back to the crisis team who made no contact with me what so ever. So I rang them two days later, on the Thursday (At this point I have been truly suicidal since monday evening) but I kept hanging on, sure that I would be seen once I'd spoken with the crisis team. However they informed me that they couldn't see me till monday. I couldn't believe it, Iwas expected to wait nearly a week since I sought help to stop me taking my life, before I saw anyone.
I lost it at this point, I just knew I couldn't do this any more. I completely broke down. I wanted to die more than anything in the world at this point. However my dad was in so I couldn't do anything. I felt completely at a loss, as to what to do. I just wanted it all too end and I couldn't see any other way out. Finally my mum got on the phone to them and managed to get me seen that day. Their answer? We'll put you on diazapam for a few weeks and continue to monitor you weekly for six weeks.
I felt like no one was really taking what I was saying seriously. No matter what I said, it seemed like they were saying "you're fine". The reason I believe for this? I truly believe many including health professions still believe that is someone wanted to commit suicide they just would.
Let me now explain what made me seek help rather than just kill myself. Firstly death isn't something I wanted. That is very important to understand. So I can hear many of you saying "so you musn't have wanted to kill yourself if death isn't what you wanted" but you would be wrong. I wanted the pain, the anguish, the constant battle, the overwhelming emotions to stop and death seemed to be the only way to make that happen. So death was just a side affect, but it did not change the fact that I very much wanted to commit suicide because then, all that, that I have just mentioned would stop and I was more than willing to allow death to be part of that.
Now I hear you saying "okay so you wanted to but you sought help so you couldn't 'really' have wanted to, right?" again wrong. I sought help because I had the tiniest bit of hope in me that maybe if I seek help, the pain and anguish will get taken away and I won't have to live this way any more. As I have mentioned I have been put on diazapam for a temporary time. So at this moment in time, this all has gone away and I have no intention of committing suicide. This however is not a long term solution.
Trust me when I say, when someone tells you they are feeling suicidal, they are not just looking for attention, they need help.
Tuesday, 27 August 2013
Grief and loss are different
Losing someone you are close to and talk to nearly every day is hard to come to terms with. How can it be they are no longer here? How can I just never speak to them again? It seems to make no sense. Although death is part of life, and something we all experience, when it happens to someone close to you, the logic goes out of the window and suddenly it is incomprehensible that this could happen.
Recently I lost someone that I was extremely close to and I never realised how much they meant to me, until I could no longer talk with them. I depended on this person in ways I never knew. I felt safe, because I knew that no matter what they would always be there for me, that was just the type of person they were. Suddenly losing that has bought with it a whole host of emotions that I have never really experienced in this way before.
For example today I was walking into a building with my mum and I was talking about keys, and I said that many people found it strange that I had my mum and dads house keys and then went on to say that people also found it strange that I had, this persons house keys. This for some reason bought me to the point of tears. I was just standing there trying my hardest to hold back the tears. Yet other times I can talk about this person and not cry a single tear. The longer since the loss, the harder that seems to be.
You see when you first lose someone, I think in the back of your mine, subconsciously you don't really believe they are gone, it's like it isn't real. Like it never happened in the first place. You've been to the funeral, you've said your goodbye's but it still doesn't seem in any way real. You still expect to be able to pop round and see them, have a chat with them. Tell them what's going on. For a while I think it is easier to just feel as though they're not available. The longer since they have passed though, the harder that gets. You start to realise there is nothing you can do, you will never be able to talk to them ever again. Never be able to tell them about your achievements, see them laugh, nothing and that's when it becomes hard to take.
When you do something positive, it becomes bitter sweet because you feel good that you have done this positive thing but you want to tell this person and you can't. So suddenly you're crying again. Other times you just feel generally happy. As though everything is okay, then something small will remind you of them an you begin to feel angry at yourself for smiling and being able to go on, even though they're not here. Then you start to feel guilty because you know that's not what they would have wanted. They of course would want you to be happy. Being happy in a time of grief will always be bitter sweet though.
I have found that I can go from looking at a picture of a sweet (not even one this person has ever mentioned in the time I have known them) to thinking about how much you miss them, in just a few short thoughts. It is like everything you do reminds you of them and sometimes you wish it would stop. Sometimes you don't want to be reminded all the time but then you feel once again guilty, because how can you not want to be reminded of someone you loved?
Grief and loss are most definitely two different things. I can say without a doubt this is the first time I have ever truly grieved. I miss this person every day and I would do anything to bring them back. I will always remember them and I know life has to go on. Sometimes though, it just feels wrong for life to go on as normal when someone that was so important to me is no longer here.
Saturday, 27 April 2013
The new benefits system and mental healh treatment
There are many things in this blog post that I am not happy to be sharing but I feel strongly that people need to tell their stories about what the benefits system is really doing to people. So I have decided to ignore everything in me that is telling me not to post this, and post it anyway. I believe that keeping quiet is only giving this government more power and I no longer wish to allow this government to continuously tell lies about what they are setting out to do with the benefits system-so here is my story-please do not judge me too harshly lol
This has resulted in me claiming ESA and DLA. I finished a degree in Psychology and counselling in May last year and gave myself a year to recover from the mental health issues I have had for ten years now. I wanted to get better, get a job and save to do my masters, so that I could eventually become a counsellor and help people in my situation.
The problem I have found with this is two fold. First is actually getting treatment to suit me. The only treatment that seems to be available on the NHS is CBT-which I have previously had to no avail and medication, which the side affects of are always too much for me to get through. I have found that I am now blamed for my illness and viewed as someone that "doen't want help" which is incorrect. I do want help and I do want treatment, I just want a treatment that suits me. Any mental health professional knows that no one form of therapy suits every single person. Yet this is no longer coming across. CBT is cheap and fast and therefore the only form of therapy that I seem to be able to get. While the figures for the success rate of CBT may look impressive at first glance-at around 49%-this still leaves 51% of people that make no improvement throughout CBT treatment. So I fail to understand how this can possibly be seen as a treatment that helps all.
Further to this on follow up studies a year after treatment the success rate fell to 39% and two years are this fell to 18% of people successfully helped through CBT-it also found that during this period some paitients had received further treatment. Also the majority of the 18% were the ones that scored at the bottom end for meeting the criteria for an anxiety condition. Which suggests that for people with a more severe case of anxiety-such as myself-CBT is of absolutely no use. Yet this seems to be the treatment continuously pushed upon people. I myself have often felt hopeless as a result of CBT not working as so many professionals will tell you the only time it doesn't work is when you don't put the effort in-not really a good thing to say to people with mental health issues-especially when the failure rate is so high.
The second wall I find I face in my recovery is the constant badgering I get through the benefits system, to go for medicals, fill out medical forms to prove my illness. I am constantly found to be in the medium term and work can be considered in 6 months. This means that while 6 months sounds like a long time in reality this drops to 4 months before the whole process starts again.
I will receive a medical form 2 months before the date that my review needs to be done. I filled it out, sent it back (filling out the form on its own is extremely stressful because you have to admit to yourself all the ways in which your illness affects your life-I have found this has made me a lot more depressed than normal).
I sent it back and had a very worrying two month wait until I heard anything. This sent my anxiety through the roof and I became extremely irrational. I lost friends during this period as I became paranoid and starting attacking people-verbally-that I care about. In the end I ended up at the hospital as my friend was worried that I would do something stupid. I had become suicidal at the time and the thought of taking my own life became very rational to me. After months of not self harming I began to self harm again.
I eventually received a letter to say I am in the work related activity group, which means the DWP consider me to be someone who is ready to work on returning to the work place. However they do not wish to give me any mental health support to get there. They make no allowances for my illness, I get an appointment for my meetings with my advisor at Cheshire training and I have no choice but to attend-despite the fact that I can have days when I am so anxious I find it impossible to get out of bed, let a lone out of the house! I cannot guarantee which days these will be and therefore I may be unable to attend on the day of my appointment, yet if this happens I get sanctioned.
I did a degree while ill and not only did I find it a lot less stressful and worrying but I found they were more accommodating to my illness. They made allowances because of my illness, I was under a lot less pressure there than I am now. To me this makes no sense. How can it be an academic setting is more supportive of an illness than the benefit system that s set up to support me during my time of illness?
The only way to describe what they are doing is it feels like they are poking you constantly saying "are you ready for work now?" "you need to get out to work" "you need tough love" "you should be at work by now" while at the same time giving me no suitable treatment for me, to get me there!
The way they are treating people like me is not likely to get anyone out to work, it is not tough love, there is no love involved in any of this. The compassion has gone out of this government and again the poor are being made to pay. I am one month off of my year deadline and I am a lot worse not better. This new system is not only, not helping me back into work, it is also guaranteeing that I will be unlikely to be well enough to return to work for a very very long time!
Monday, 18 March 2013
What is really the measure of success?
I want to do a job that won't exactly make me rich but it will make a difference in a few people's lives. That will make me happy. Knowing that for someone, their life will be changed for the better, due to the work I do. Yet because it won't make me loads of money, I will not be seen as a success?
When I was growing up, we weren't rich, we had very little money to our name. This made people look down on us. Made people think "I wouldn't want to be like them" the thing is though, my parents are kind, loving, loyal people, who will help those they care about. To me that is success. The fact that they are good people who have people in their lives who they are about, is more important than the brand of the clothes on their backs.
I want to be someone who will always be there for others. Who will always aim for happiness over money. Of course we all need money to survive. All I want to be able to do though, if live comfortably. Be able to pay my bills, buy new clothes every now and again. Basically not have to really struggle for money. If I can get that, I will be happy.
I believe success should be measured by happiness. Money is something that we earn, something that gives us the ability to feed our families, pay our bills and go on a holiday once or maybe twice a year. Happiness is the thing that makes our life complete and for some people happiness can only come with money.
I challenge you though, if you believe happiness can only come with money, look around at all the people in your life, the animals, the every day things that make you smile and ask yourself, would you give it all up to be rich? I know I won't!
Sunday, 17 March 2013
Finding me
If people can become this obsessed with someone they have never met, that is alarming. It is not like I am famous or anything. I am just a person who does not agree with them. They are probably reading this, getting wound up, that they cannot respond. Why though? What is the point?
I know myself I have at times allowed myself to become very involved in these arguments and allowed it to become personal, but contact with these people has now been cut. I have no contact with them. I am simply in a group that they are in but they never comment. Surely they should leave it alone now? The time should have come for them to move on from our arguments.
The funny thing is, they are not just obsessed with me. There is another member they also do not get on with and they seem to have a little obsession with her too. In fact I swear they think we have magical powers that means we control the internet.
They seem to believe I attention seek as I share things about my personal life online. Because I am NOT ashamed to have suffered with mental health issues. This does not make me an attention seeker. I do this online because I have the freedom to do so. In fact if you put my user name into google a lot of pages will come up with posts from me in different groups. These groups are for people with mental health issues such as my own. If they bothered to read it they would see though, that some of the posts are also comments on other peoples threads offering support. I do this because it does not come back and bite me in the arse in my real life. It is separate from my real life. People from me real life are not members in these groups and even though I have fallen out with people in my real life, none of them have felt the need to become so obsessed with me that they search my username and discuss what they found.
I honestly hope these people get help, seriously. They need to learn to let go. Neither myself nor Donna have any magical powers. We do not control the internet, I think I would have money for things like therapy and the such like if I had any control over the internet what so ever. I really do feel for them. I cannot imagine how hard it must be to become so obsessed with two people they have never met.
Monday, 21 January 2013
Inside my head
With no idea how to cope or even how to let go, I find I want to scream and cry and let this all out. Yet something inside my head is saying "no you cannot show that level of vulnerability", telling me I cannot cry, I cannot scream I cannot allow myself to be out of control. I cannot allow myself to let it flow out.
Every day I wake up wondering whether this will ever change but surely there must be an answer? Something deep within. A reason I am like this, a reason it can be over come. How do I find this though? What do I do?
So many seem to think I make this out to be worse than it is, when they see me out and about they assume I must be fine. They do not see the struggle inside, the voice in my head screaming that I cannot do this. The adrenaline, telling me to run. The amount I have to push myself just to get out of the door. Sometimes I want to stop pushing myself so hard, I want to just let it be, but I know I cannot do that, as I do not want to end up a prisoner in my own flat. I have to push myself, I have to try and go out.
Some days I manage to control the fear, instead of the fear controlling me. I work hard to make sure no one can see that right in that moment I am having a panic attack. This does not mean I do not struggle, I do not fight and I simply just make it out worse than it is, it means I have become good at hiding what is reallly going on in my head at that moment in time.
Yet no matter how hard I try, how much I push myself, no matter what I do, I just cannot seem to get past this wall, that in there standing between me and getting better. I try to break it down, I try to keep on going, but still it stays knocking me back at every attempt.
I sometimes wonder how much more I can take? Whether I can continue to fight and to be. Yet I know I have to fight, I know I have to be. I want to live, just not with this pain and fear. I want to be free of it, I want to be okay.
I wish my life were a little simpler and not so hard to get through and just be.
Tuesday, 18 December 2012
I'm done
Anyway I have also found out that they are referring me back to IAPT, which basically means another few rounds of CBT. No matter how many times they give me CBT it will not make a difference to my life. There will be no change. I will still have these issues and if I deal with some of the symptoms then guess what? New symptoms pop up any how. Not that anyone has ever listened when I have said that.
Basically in this area, unless you are bad enough to be in a hospital or have been in hospital for mental health issues, the treatment you can receive is CBT or medication and screwe you if it doesn't work, because that is all you will ever have access to.
For a while there I started to think things were working out. I was going to get treatment. I was going to work at-with support-getting better. Turns out no matter what happens that is not going to happen. So I have decided I give up.
I have been ill for 9 years now, at least 6 of those years I have been fighting for treatment, to no avail. So you know what? I am done! I am too tired to keep fighting this. I accept that this is my life. I can't fight that any more, It won't make a difference. I am done! I give up!
Tuesday, 20 November 2012
fear
The first thing that scares me most is the fear I have of being like this forever. The fear I feel about never being able to work. Or never being able to go out of the house without feeling anxious. Never being able to feel relaxed and at ease without going into a panic attack. Never having friends over without constantly feeling on edge. Never being able to go and visit a friend without questioning it at every step and worrying about it the night before. Never being able to go about a days business without feeling stressed out and scared. this terrifies me. This is not how I want to live the rest of my life. I want to wake up and feel okay to go out and work and all of those things that I can't do right now.
However the other thing that scares the hell out of me is, and this will sound stupid, getting better. It terrifies me. This is not something that I have ever admitted to anyone, even myself. As it makes it sound as though I don't want to get better, but I really do. It is just the fear of who I am without the anxiety. When I moved to Spain I learnt who I was, I learnt what I believed in. I begun to behave like me without worrying about how other people perceived me. I grew into an adult. I became me.
Whilst finding out who I was though, I had anxiety. Meaning the anxiety became part of me, without me even realising. It is the thing that stops me doing things. It is the thing that controls my behaviour and part of me wonders who I will be without it. Will I suddenly start drinking? Will I suddenly start partying every night away? If I only have a little fear about something, I will normally follow it through, I have become used to that fear. I do not let a little fear control me. I need to feel extreme anxiety to stop me doing something. My fear is, without the extreme anxiety, I will get myself into all sorts of stupid situations. that scares the hell out of me.
So at the same time as fearing being like this for the rest of my life. I also fear not being like this for the rest of my life, to the same degree.
Monday, 29 October 2012
Trapped
I love to be sociable but I hate it at the same time. I want to have friends over, I want to go out and enjoy myself. I love to sit and chat or go for walks or anything really that means I am around other people. I love to be around other people. I really do! I just can't do it. I don't remember a single time in recent years that I have been in a social situation and not felt anxious, unless I have taken a Valium (I sometimes get them from the doctor, not often though) to make me relaxed but then I am extremely relaxed. People can't tell that I am feeling anxious, hell people can't even tell I am having a panic attack anymore. Well depending on the severity of the panic attack!
It is like I have a constant internal dilemma going on as I want to do these things I just can't. It seems to affect every aspect of my life and no matter how hard I try I just can't seem to get passed it. A lot of people think I don't try at all but for me, going out of the house for even five minutes presents a challenge. I remember one person telling me I needed to "get out of my comfort zone" which I do every day. My comfort zone is laying in bed and staying there! This is not what I do on a daily basis though. I do not feel comfortable getting out of bed, I do not feel comfortable when I have people over, I do not feel comfortable when I go to the shops. I just don't feel comfortable. I feel anxious and scared most of the time.
I have recently been given anti depressants to try and I have tried them. I found however that they made me drowsey and anxious at the same. I could hardly keep my eyes open but also had no chance of getting any sleep because I was constantly scared that I was going to die. Then when night time came and I decided to go and get some sleep-the anxiety had worn off by now-but then I still couldn't sleep. I was awake till well gone 7am! This was not ideal as I had a lot going on and had no time for no sleep. It was like the day from hell only worse. My only escape from anxiety is sleeping. Whether that be napping in the day or sleeping at night. Yet this didn't just take one away from me it took both! I had an entire night and day feeling anxious. No sleep and completely drowsy. The next day I found I felt depressed and sluggish. I was sure this was down to the lack of sleep, which I did manage to catch up on, but then I still felt depressed after that. I don't see how the hell I will get through two weeks of that, and then maybe feel better. The thought of trying to take them again fills me with terror.
I get so angry at myself for this, because there is a chance that if I could just get through the first 2-3 weeks of anti depressants making me feel worse than I already do, there is a chance I would feel better. However I can't seem to do that. I feel trapped by my own mind. I want to feel like me again, without all these constant extreme feelings. Just be myself and not constantly worry about what everyone thinks of me, or what I am saying, or how I am saying it. To be able to just sit and have a conversation without a million things running through my mind, from whether I am going to die or not, to whether what I just said is being perceived as stupid.
The best part of all of this is, when I am not anxious I worry about why I am not anxious. What is happening that means I am not anxious. Anxiety has become such a big part of my life. I completely see that everything happens for a reason and I know without my anxiety the chances that I would ever have graduated university are stupidly slim! So I can see why I have suffered with it, yet it all seems like it has become too much now and I fear that for me there is no way out.
Sunday, 30 September 2012
positivity?
For some reason however, I feel the positive feelings for maybe an hour or so and then I am back to feeling anxious or depressed. I sit and try and force myself to see the good in my life and I honestly do know there is a lot of good in my life right now. It doesn't change this feeling of wanting to run and hide and not come out again for a very long time.
I know people must be tired of me going on, when everything in my life seems to be going the way I need it to and yet I still am not happy. I can really understand why that may annoy people/ I don't want to see anyone for this reason. I can keep the fake positivity online (apart from this blog post :P) but in person I am finding it increasingly difficult to do that. I know that I have good friends in my life and I am lucky for that but one day the way I am will push every last one of them away and so now I just avoid people-that way when I do see them I can do everything possible to appear positive and happy. Then maybe I won't lose them.
One day I plan on really feeling and being positive, right now I'm just working on getting out of bed and appearing as somewhat happy.
Wednesday, 11 July 2012
Dear Teachers at Walderslade Girls School
Wednesday, 25 April 2012
Dissertation? Completed without a hitch! (I wish)
I had to rethink my questions though, as the first set of questions only gained ten minutes worth of answers and I knew this was not long enough. I needed between 20-30 minutes worth. So I went back to the drawing board and thought about what exactly it was, I was trying to find out. So I looked again at some of the misconcetions surrounding self-harm and developed more questions based on this. Now though, there was a problem, we had hit Christmas holidays. Everyone will have gone home, so I had to wait until after Christmas to be able to continue the intrviews. My project schedual at this point had gone out of the window!
I spent Christmas working on my other essays, as I thought I needed to pay some attention to those, if I want a good grade, my project was not the only thing I had going on! My second interview wasn't until february but this one gave me 22 minutes. This ade me so happy. So I continued to intrview people and I interviewed a further 7 partciants, yet three of the participants had to be excluded from the data set, as they were only 10-15 minutes long. I knew this time it was not the questions though, as I had enough from other people.
However, this did mean I only had 5 interviews that were useable all in all. So I went and spoke to my tutor, to see whether I still needed to interview more, as we were gettng close to the deadline for the draft to be in. She said as long as I felt I had enough data to work with, it should be okay. So that was a relief I must admit. Now we come to the hard bit-working with the data.
The reason I chose a qualitative study over a quantitative one, is because I hate numbers! Seriously despise them! So to me doing a qualitative study seemed to be the lesser of two evils. You see with quantitative, you have to use SPSS and all sorts, and the thought of that made me want to cry! I had only ever done one qualitative though, and I didn't do overly great on it. Yet I knew where it was I had gone wrong and decided that I would prefer that, over the other.
To start with, with the data, I had to transcribe it, talk about mind numbing boredem when doing that. Just listen, pause and type. Each one took me at least 4 hours to complete. Meaing I had spent twenty hours with my data, before I even began to analyse it, and that is not ncluding all the time I spent trying to get people to take part, things going wrong when people agreed and actually carrying out th interviews. By this oint, I had already had enough of my project, I hated it and didn't think it was any good. So I was definitely lot looking forward to my write up.
he analysing I thought would be pretty simple, choose some extracts, and write about them, sounds simple enough, right? Wrong! First you have to read the transcripts about 4-5 times just to make sure you know your data, before you start deciding what can be used and what needs to be left out. So then you need to look at what is happening in the data, what looks good, what looks like it is similar or contrasting to what other participants have said. Once you have done that, it is time to start deciding which extracts can be used within your study and why they can be used.
I had so had enough of the things my participants had said at this point (Sorry to any of you reading this, it was not what you said, just the amount if time I had spent reading it! lol) as i knew the interviews inside out, but this did not seem to make the process any easier, I still had to sit for hours deciding what can be used and what needs to be left out. So then I started to put all the things that were similar and contrasting together, to see what those sub-themes could be named and how these fit together as main themes. I hadn't even started talking about what the participants had said yet, and naming the sub-themes was much more difficult than I thought it would be, as I just kept thinking of the questions I had asked. So in the end my friend took a look for me and helped me come up with more sufficiant names. Then I had to group these together into main theme. That bit was pretty simple to be honest, so didn't stress me out too much!
The time it took however, to write up what they had said, felt like an eternity. I think all in all, that part took me well over a week, with a little panic inbetween, where I believed I had lost over 1,000 words that I had typed up the night before, but my friends boyfriend helped me sort that one! (Where would I be now without these people? lol).
Whilst doing all of these other things I had been reading up about self harm and taking down notes about what would be good in my study. I had also started writing up the introduction, but it was most definitely in its early stages, didn't even have sub-headings at first! So once I had finished the analysis, I had to get down to it with the rest of the write up, which felt like it took forever too. I remember when we first started our projects, they said "8,000, sounds like a lot of words but trust me, you will want more". I could not imagine wanting more than 8,000 words, that is of course until I was writing it up, but the time I got to the discussion, I only had about 300 words left to spare!! I hadn't even done an abstract either. Now I really wanted to cry, I did what I could though and got 200 words over the word count, which obviously was too much! We're allowed only under 1% over otherwise we drop a grade point. My discussion also looked pretty crap at this point, as I only had two studies in it and not a whole lot else!
Then my tutor told me to change my results section, so that it didn't have so much in it and it was easier to follow. To be honest, this annoyed the hell out of me. I LOVED my results section and felt it was the best part of the study, so I spent two days throwing a tiny little trantrum to myself, where I told myself I was not going to change the results section as it did not need changing! Then I realised I am an adult and therefore have to act like one, even if I do want to act like a little child! So I set about changing my results and aking words out of it. I thought this would take a lot longer than it did however, as it only took around 3 hours to complete it! it also gave me an extra 800 words to work with, so I got back to work on my discussion!
Now the hard thing about my study was, it had never really been done before. There is very little data out there on public stigma towards people who self harm. So I was a little stressed trying to get things to relate to my study, but knew if I worded it right, I would manage it. I did at this point however, wish I had done a different study that I may be able to find more research on, but then I don't think it would be as interesting. Well to others the one I have done now, may not be interesting, but I found it to be lol. Wat I had to do is somehow relate the findings of studies of A & E staff to that of mine. Which was hard as they're not really the same thing, but it still seemed to mash together somehow!!
So finally I was well on y way, the worst thing was the niggly parts that had to be changed. Such as changing the words self harm to self-harm and then changing Self-harm to self-harm. This seems pretty easy but when you have used a word over 300 times, it gets tedious to go through and continually change every single one of them.
And then came the day to get it printed and binded. Now the printing side of it sounds pretty simple right? Again wrong! I printed out three copies, which lets just say cost quite a bit. Only as they were printing I realised some pages were a yellow colour and some pages were crisp white. This is not something I could have. If it were just an essay, I would have accepted it, but NOT on my dissertation! Not a chance! I seriously felt like crying at this point, as I just could not handle how crappy it woud look. So my friend, Lucy told me to go and tell the library staff, who kindly refuded my money and ensured the next printer I went on, had all white paper.
Then to print the pages that needed to be in colour. This is another thing I thought would be simple, expensive but simple. I was again wrong. The first lot printed out double sided. So I had to print them again!! This time I made sure they were one sided. Then headed over to start binding them. I honestly just wanted to cry at this point, nothing felt like it was going right.
The binding I knew wouldn't be simple but with two of us, it made it a little easier, probably halved the time it took me to do it! Only one small snag, the second document I started to do, I then realised I had been putting them on the binder backwards, so the whole project was mixed up, I was right at the end of that one when I realised, so had to take it all off!! Then I started to do it again, when we realised I had punched the holes in two of the pages on the wrong side, so I sent Lucy off to re-print them. while i nicked those two pages from the third one that needed binding. Finally, after about two hours spent in the library I had all three printed and bound, so off we went to hand our projects in! I must admit, although it is a relief that it is handed in, I still feel a little sick about it, as I cannot change anything on it and now keep noticing small little things that are wrong with it. I need to stop looking at it!
All in all, this project has been the hardest piece of work I have ever had to do! However I showed myself I could do it and feel like I have achieved a hell of a lot a long the way! So YAY me!! lol
Tuesday, 20 March 2012
Going to be away
Wish me luck for getting my work done :D
Wednesday, 14 March 2012
What's the point in a student rep?
What's the point in a student rep?
So this year I was appointed student rep a while a go, I thought this would be a good thing, something good to put on my CV while at the same time giving a voice to the students. Sounds great, right? Wrong!!
Firstly there is no point in student reps, when they're not really listened to in the first place. I bought up a good few issues at the meeting, that the notes reflected nothing but dismissal, even if the tutors did try and deny it, this is still what came across in the notes. Not just to me either. One other student actually said "the notes basically say, here are the issues and here is why you are wrong".
I feel as a student rep I should bring this to light, as I am here to represent the students. Yet it feels to me as though I am being made out to be doing this, purely to cause trouble. Yet I have been in so many situations where teachers have hated me, I know what hell it makes my life and I wouldn't want to do something that I know will get tutors to hate me if I didn't feel it necessary.
So I emailed my points across to said tutor and again was met with a list of reasons I was wrong. I then arranged an appointment to see the subject feild leader and the tutor that attended the meeting. I felt that this is something that couldn't be dropped as it seemed to have a negative impact on students who are currently studying, which I thought was unfair.
I got a letter from one of the students who felt that one point was unfair-this was about dyslexia and still having comments on your work about written expression, spelling and grammar, even though these should not be taken into account, basically this student was unhappy as it is frustrating to keep getting told your sentence structure isn't great, your spelling is poor, your grammar needs work blah blah blah, as no matter how much they try, they produce the same results. The fact is, you then start to try and change it, which is even more frustrating as you are then trying to do a lot more than you are capable of. Which can then hinder your work. It is not like students with dyslexia don't know that their work is not to the same standard as everyone else, yet having it pointed out very time you hand in work is like poking someone in on crutches and saying "you can't walk the same as everyone else" it is pointing out the obvious and totally pointless. I can really relate to this, as I have dyslexia and I know myself it is frustrating, however I also knew I couldn't bring it about as my issue, mainly because it was not my issue, it was bought up by someone else, I could just understand the viewpoint-so the letter basically said there was no point in leaving comments about grammar and the fact that comments were there, concerns her. This was discussed at length and at least an email was sent out to explain students with the yellow sticker were not being marked down for these things. Which clearly is not really resolving the problem as students with dyslexia are still having useless comments on their work that do them no good at all.
then we got onto another issue about a member of staff, and I was basically told I was lying about it. Why the hell I would lie about something like that I have no idea, especially as it wasn't an issue that was bought to me. This was an issue bought to another student rep, yet when I was talking about it with this student rep, someone else asked me if I was talking about this member of staff as relayed to me how they felt about it. So I then triple checked the facts with her, so I knew I was going in with the correct facts. Yet I got told "that seems very unusual as that is not the story I get, but I will email (member of staff).
I was also informed that if people have specific problems with the notes, they should go to the tutors and not come through me, as then they are getting things third hand. Well correct me if I am wrong, but surely a student rep is there, for the students to discuss issues with and then have that relayed to tutors. I do not understand what I am missing here. I tried to explain that some students do not feel confident enough to do so, so would rather go through me. However it honestly felt like I was being made out to be a liar and anyone that knows me, knows how much I hate liars. Why would anyone put themselves in a position of arguing with tutors purely for the fun of it? I mean this is going to have a knock on affect for me, as it will no doubt be relayed to other tutors that I tried to cause trouble, when in reality I did exactly what I was appointed to do, I gave a voice to the students!
Saturday, 10 March 2012
Missing Spain
Wednesday, 7 March 2012
maybe, just maybe
So I may finally be getting somewhere. After 7 years of fighting with doctors and arguing that CBT does not work for me, I think I am finally being taken seriously! I received a call at 9:06 this morning. I 'd had 0 hours sleep all night so weren't really in the mood for a phone call, but I didn't recognise the number, so it had me a little intrigued. So I answered.
It was the people from the healthy minds network. I know that their first port of call is CBT, so I weren't holding out much hope for anything further than that and I knew full well if that was what they offered me I was going to decline and try once more t go back to the doctors. Yet this time, she said "I see you have had four lots of CBT, did you find that in any way helpful". Of course I answered no, as it just isn't helpful t me. I explained that my last therapist actually said to me, that I was doing all that was required, but it just isn't working for me. This is the point where I expected her to say "well sorry, there is not really much we can do for you the" and I'd be back at square one, as always. Only she didn't.
She informed me that I could go for an assessment and then be referred on to either the psychology or psychiatry department. She said there are four levels. The first is self help, then medication then CBT and then what they are now referring me to. She explained because this has been a long standing problem, and that very little seems to have helped, she does not see a problem with being referred on for the fourth level.
Apparently, if CBT doesn't work, places like this should refer on to the fourth level, especially if it is a long standing problem. I do not really understand why I have been discharged from CBT four times, without any recommendation for further treatment. I mean surely after the fourth time, it was pretty obvious that this just is not going to work for me.
Anyhow, I have my appointment for assessment, on whether I am in need of longer term treatment, in three weeks time. I am kind of glad I hadn't slept all night, otherwise, I doubt I would have been so open on the phone. I am just hoping that this is it. This is the time, when someone listen to me and takes my issues seriously. I really and truly hope, that for once, I will feel like I am being taken seriously and not just being palmed off and told that CBT is the only way. As if this time I get nowhere, I am not sure I have enough fight in me to once again, fight for the treatment I believe I deserve.
Tuesday, 6 March 2012
Feeling the pressure
So being in my third year is tough. I always knew it was going to be tough but right now, I'm not even sure I can do it. I'm stressed by the amount of work I have on, and yet I seem to lose a lot of my motivation, I suppose because I am terrified that if I put everything I have into this and don't get a good mark, or even worse, fail, I will not believe I am able to do anything.
I honestly think it was a mistake going to university while I still have axiety and depression as that takes up so much of my time. Like yesterday for instance, I was sitting transcribing-and getting quite far may I add-when all of a suddon this massive wave of anxiety hit me. I wanted to carry on, I needed to carry on. I really do not have the time to be taking breaks due to anxiety, however I could not carry on. I had to stop because this anxiety was not going away. I tried to fight it, I tried to be strong, but the anxiety won out, yet again.
I strongly believe I would be doing much better right now, if it were not for the anxiety and depression. I would go to the library regularly, I would sit and study without suddenly being over come by fear. All these things would improve my grades massively. Yet I also know that there are plenty of people out there that don't even believe that I have anxiety in the firt place. I mean people often do not believe what they cannot see.
This is something I fnd I also struggle with. I have had anxiety for at least 8 years now, it comes to a point where you learn to only panic on the inside, and therefore it looks, much of the time, like I am simply making excuses. I wish I were. If I were making excuses, at least I'd be able to give myself a kick up the butt and get going again. Yet for me it is not as simple as that. When I kick myself up the butt, and force myself to do the things that scare me, I then find it makes things all the worse, I begin to crack under the pressure and begin to spirel back into an even worse state.
I was hoping, that while at uni, I would work on getting myself better. I would be able to come out of it, well and able to work a full time job. I am ashamed to say, this has not happened. There is no way when I finish I will be able to work. Even if I pass, I will still manage to feel like a failiur. I mean who goes to uni for three years and then comes out of it and goes on unemployment benefits? I know-or rather I believe-I have a good reason. Yet I still feel many people judging me as a result.
I do plan on somehow having a gradual reintroduction to work, as I believe that is the only way I will ever really be able to do it. Yet I fear this will not be good enough for many. I fear that many will still judge and believe me to be lazy. Sometimes I wish I could show outward signs of my anxiety, I wish people could see what it does. Yet that will never happen because I have become so cotrolled in it, that most of the time, when I am feeling extreme anxiety I appear to be completely normal.
Friday, 2 March 2012
Ever wonder about some people?
However, when someone decides they absolutely despise you and just cannot get over what a terrible person they think you are, to the point of them thinking you are nearly evil personified, why would that person then be so interested in keeping up to date with what is going on in your life?
Wednesday, 29 February 2012
what's your personality type?
You are a creative person with a great imagination. You enjoy living in your own inner world.
Open minded and accepting, you strive for harmony in your important relationships.
It takes a long time for people to get to know you. You are hesitant to let people get close to you.
But once you care for someone, you do everything you can to help them grow and develop.
In love, you tend to have high (and often unrealistic) standards.
You are very sensitive. You tend to have intense feelings.
At work, you need to do something that expresses your personal values.
You would make an excellent writer, psychologist, or artist.
How you see yourself: Unselfish, empathetic, and spiritual
When other people don't get you, they see you as: Unrealistic, naive, and weak